Blog

Raising Awareness of Congenital CMV in New Jersey

Meet 2018 Public Health Awareness Mini Grant Recipients Allison Goldschlag-Reinking and Laurie Navin of The Central Jersey Family Health Consortium, and learn more about their project to implement a comprehensive educational program about congenital CMV in their region.

Raising Awareness of CMV in Arizona

Meet 2018 Public Health Awareness Mini Grant Recipient Melissa Selbt, MPH, Executive Director of The EAR Foundation of Arizona, and learn more about her project to educate and evaluate CMV policy within her state. 

Football Fundraising Ideas

Fundraising tips and ideas just in time for football season!

The Ohio CMV Advocacy Project

In May, National CMV awarded the public health awareness mini grant pilot to The Ohio CMV Advocacy Project. We’d like to share their experience in hopes of inspiring others to begin advocating for CMV awareness, on behalf of and in partnership with National CMV, in their state.

Know About CMV

June is CMV Awareness Month, when the CMV community both in the U.S. and abroad comes together virtually to raise awareness about congenital CMV. Read more to learn how you can advocate for CMV awareness this June.

Help Childcare Providers Fight CMV

Author: Lisa Saunders I'm a former licensed childcare provider who, like many across the United States, had never heard of my occupational risk for CMV, the #1 viral cause of birth defects. CMV is often found in child care centers. I was unaware that cytomegalovirus (CMV) was an occupational risk for daycare educators when I became a licensed home daycare provider in Maryland in 1987. I didn’t know that CMV could devastate my pregnancy with Elizabeth, who was born severely disabled by congenital CMV in 1989. 

Rare Disease Day

Author: Emily Walsh Rare Disease Day was first established by the health organization EURORDIS in 2008 to bring greater awareness to conditions that typically escape widespread notice. Rare diseases are also known as orphan diseases, as they typically impact only a fraction of the population. It may not seem like a lot, but currently one in ten Americans are living with a rare disease. Congenital CMV is considered a "rare disease".

3 Ways to Support National CMV on #GivingTuesday

#GivingTuesday is a global giving movement that has been built by individuals, families, organizations, businesses, and communities in all 50 states and in countries around the world. This year, #GivingTuesday falls on November 28. Join us by making a charitable gift as we work to #stopCMV.

CMV awareness is dangerously low as compared to other congenital diseases

Even though congenital CMV is the leading viral cause of congenital disabilities and the leading non-genetic cause of childhood hearing loss, most adults have never heard of it. 

​Key Observations from the 2017 International CMV Conference

Approximately 300 of the world’s leading experts in CMV-related research came together in the Netherlands on April 30th for the 6th International CMV Conference (16th International CMV/betaherpesvirus Workshop). This event aims to connect basic science and clinical expertise research to prevent and cure CMV diseases. Several trusted advisors to the National CMV Foundation and members of our Research Priorities Committee attended and presented on current studies and recent findings.