Other Helpful Organizations

Learning about congenital CMV, or any of its wide-ranging developmental diagnoses, often presents a range of emotional, as well as physical, challenges for both the child and his or her family members. The National CMV Foundation works to connect parents and families with additional CMV resources for those dealing with a particular diagnosis. 

For ongoing or long-term health issues, please know that there is support in various forms. Please visit the websites below to learn more, or reach out to the following groups for information regarding how to connect with others experiencing similar issues or needs. If your child is diagnosed with congenital CMV and is demonstrating behavioral, cognitive or developmental concerns, please talk to your pediatrician or pediatric specialist.

Online Support and Community

• AG Bell
• Center for Disease Control (CMV)
• CerebralPalsy.org
• Cerebral Palsy Group
• College Guide for Deaf and Hard of Hearing Students
• Epilepsy Foundation
• Hands & Voices
• Mother To Baby
• National Center for Hearing Assessment & Management (NCHAM)
• National Center on Deaf-Blindness
• National Congenital CMV Disease Registry
• National Federation of the Blind

Professional Associations

• American Academy of Family Physicians
• American Academy of Pediatrics
• American College of Obstetricians and Gynecologists
• American Pregnancy Association
• Pediatric Infectious Disease Society

The above website links are made available for informational purposes only, merely as a convenience. The National CMV Foundation takes no responsibility for the content of, or services provided by, these resources and makes no representation as to the accuracy or completeness of any information provided and shall have no liability for any damages or injuries of any kind arising from the information provided.

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