Blog

Raising Awareness of Congenital CMV in New Jersey

Meet 2018 Public Health Awareness Mini Grant Recipients Allison Goldschlag-Reinking and Laurie Navin of The Central Jersey Family Health Consortium, and learn more about their project to implement a comprehensive educational program about congenital CMV in their region.

What I Took Away from the CMV Public Health & Policy Conference

Author: Kristen H Spytek Our community of parents, advocates, early interventionists, state health employees, clinicians, researchers, scientists, and stakeholders, were well-represented in Burlington last week, and what was extremely encouraging to me, is that both individually and together, we all continue to operate on full cylinders at the very epicenter of what we’re each trying to ultimately do – save babies and prevent birth defects due to congenital CMV.

Raising Awareness of CMV in Arizona

Meet 2018 Public Health Awareness Mini Grant Recipient Melissa Selbt, MPH, Executive Director of The EAR Foundation of Arizona, and learn more about her project to educate and evaluate CMV policy within her state. 

The Ohio CMV Advocacy Project

In May, National CMV awarded the public health awareness mini grant pilot to The Ohio CMV Advocacy Project. We’d like to share their experience in hopes of inspiring others to begin advocating for CMV awareness, on behalf of and in partnership with National CMV, in their state.

A Mother's Fight: Maine's CDC CMV Recommendations

Author: Laura Sweet LD 87 was referred to the Legislature’s Joint Standing Committee on Health and Human Services and a public hearing and work session took place in February 2017. The whole process moved much more quickly than I anticipated. We gathered other families and supportive members of Jane’s medical and early intervention teams to testify alongside us. The Committee voted not to pass the bill, but with the understanding that the Maine Center for Disease Control and Prevention (CDC-P) would convene a multi-disciplinary work group to review issues surrounding congenital CMV and make recommendations to the Committee within a year.

3 Ways to Support National CMV on #GivingTuesday

#GivingTuesday is a global giving movement that has been built by individuals, families, organizations, businesses, and communities in all 50 states and in countries around the world. This year, #GivingTuesday falls on November 28. Join us by making a charitable gift as we work to #stopCMV.

​Get Involved: 6 Ways to Support National CMV This June

June is National CMV Awareness Month. National CMV Awareness Month is a time to educate your community about congenital CMV. Spreading CMV awareness in medical practices, therapy centers, daycares and schools is a great way to celebrate June and promote prevention practices so we may eliminate congenital CMV for the next generation. 

2017 CMV Legislation Proposed in Four States

What do Idaho, Iowa, Oregon, and Maine have in common? These states have proposed state CMV legislation for 2017! Thanks to the hard work of sponsors, parents, physicians, and other advocates within these states, CMV legislation with proposed education and/or screening programs will be evaluated during this legislative session in each individual state. So what's in all of these bills? Check out our blog for summaries and links to bill text and updates. 

Europe's response to CMV legislative efforts in the US

As the 2017 legislative session kicks off in states across America, CMV advocates and parents look backwards to reflect on our past successes and lessons learned while looking forward to upcoming bills and initiatives designed to improve CMV education and screening. And we aren't alone. As recent states such as Utah, Illinois, and Connecticut have marked successful passage of CMV statutes, other countries have been taking notice of this new and novel approach to CMV advocacy in the states. 

​CMV Public Health & Policy Conference Roundup - Part Two

Last week saw the conclusion of the 2nd CMV Public Health & Policy Conference in Austin, Texas. As always, organizers sought to engage professionals and parents in the effort to reduce the number of babies born with congenital CMV through public awareness and advocacy efforts nationwide.