Blog

Board Member Spotlight: Zack Rigoni

Author: Zachary Rigoni Meet Zack Rigoni. Zack is an investment banker in NYC focused on upstream oil & gas companies, and he brings dynamic energy and a new perspective to the pursuit of achieving cCMV awareness in the United States. Zack is most happy when spending time with his family, including two young children. 

Compete 4 CMV Spotlight: Jeff Rich

Meet Jeff Rich. A longtime friend of founders, Kristen and John Spytek. Father of three. And, soon-to-be Compete 4 CMV - NYC Marathon finisher!

Board Member Spotlight: Albert Park

Author: Dr. Albert Park Meet Dr. Albert Park. Dr. Park is Chief of Pediatric Otolaryngology at the University of Utah and principle investigator for the ValEAR study. His focus is in pediatric hearing loss, identifying a great number of babies with congenital CMV. 

Compete 4 CMV Spotlight: Pete Zoob

Meet Pete Zoob. A longtime friend of founders, Kristen and John Spytek, and soon-to-be eight-time marathoner! We're grateful he's making #8 a Compete 4 CMV race.

What I Took Away from the CMV Public Health & Policy Conference

Author: Kristen H Spytek Our community of parents, advocates, early interventionists, state health employees, clinicians, researchers, scientists, and stakeholders, were well-represented in Burlington last week, and what was extremely encouraging to me, is that both individually and together, we all continue to operate on full cylinders at the very epicenter of what we’re each trying to ultimately do – save babies and prevent birth defects due to congenital CMV.

Compete 4 CMV Spotlight: Rob Pickus

Meet Rob Pickus. Rob is father to Noah, born with congenital CMV. He's an experienced runner and fundraiser. We're excited to have him as part of the inaugural Compete 4 CMV - NYC Marathon team! 

Board Member Spotlight: Sara Doutre

Author: Sara Doutre Meet Sara Doutre. Sara is a co-founder of National CMV Foundation and she brings real-life advocacy expertise and experience to the group. She is also a mother of three and runs her own business, Doutre Consulting, specializing in Education Policy. 

Football Fundraising Ideas

Fundraising tips and ideas just in time for football season!

Board Member Spotlight: John Spytek

Author: John Spytek Meet John Spytek. John co-founded the National CMV Foundation in July 2014, with his wife, on behalf of their daughter, Evelyn Grace. This issue is deeply personal for him and he brings a real sense of tenacity to the group, stemming from his experience in professional sports. 

The Birth Deck: Q&A with Sara Lyon

Author: Kristen Spytek & Sara Lyon It’s OK to feel contradictory emotions simultaneously. Life is dualistic, it is dark and light at once, it is pain and beauty in the same instant. Having gratitude and anger in the same breath is normal and honoring that reality is extraordinary. When we encounter great challenges and allow ourselves to feel everything without judgement or resistance, we can thrive in the aftermath.